Sometimes drugs are not enough

Avi had a very difficult day on Saturday.  We went to Synagogue like we do every Saturday morning.  Usually Avi, Shayna and I go earlier and mkm and Noam come a bit later.  Our Synagogue has a lot of age appropriate programs for kids on Saturday morning as we have a lot of young families, but Avi has never really wanted to go.  We have learned to let him be in this case, and generally he either sits with me in services, or he just plays by himself nicely (or sometimes not so nicely) in the hallyway.  This time, though, he had brought a ball with him and at some point started throwing it around and he hit a couple of people.

In the end, as soon as mkm got there, I had to take Avi home.  I think it was the first time I had to take him home from Synagogue, but it does remind us that the medication is not a cure-all.  It helps him to focus and cope better, but it does not make him a different person.

From now on, I cannot leave him unsupervised no matter what I or mkm have to give up and we will have to work with this for now.

Sunday came along, and here was a totally different Avi.  We were back at our Synagogue for our Purim Carnival.  Unfortunately due to the fire last year, the carnival was in a different room from usual and Avi did not want to go downstairs to the room.  So he stayed upstairs helping different people doing some things in the Synagogue.  He was such a good boy and in no way resembled the Avi from Saturday.

We just have to take it day by day and hope that the good days outnumber the difficult ones.

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One Response to Sometimes drugs are not enough

  1. plslade says:

    Sounds like you guys are day-to-day… like we are with Abby! This weekend she was perfect (even though we didn’t give her the medicine ALL WEEKEND) and this morning was HORRIBLE again! It’s like ticking time bomb… I’m glad Avi had a good day yesterday though. Those really good days make up for all the not-so-good ones…

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